NABTC Applauds CMS Action to Improve Access to Clinical Trials
March 16, 2010
The North American Brain Tumor Coalition joined others in the patient advocacy community in commending action by the Centers for Medicare & Medicaid Services (CMS) to remove barriers to Medicare beneficiaries’ participation in clinical trials.
Although there has been a policy for Medicare payment of routine patient care costs incurred in clinical trials since 2000, the policy does not include adequate protections for Medicare beneficiaries enrolled in Medicare Advantage (MA) plans. MA enrollees who participate in trials out of their MA plan have been required to pay out-of-network cost-sharing for the routine patient care costs of trials. Most of these patients, who do not have supplemental insurance, have found those costs unaffordably high and have declined to (more...)
Posted in Advocacy Positions, Brain Tumor Research
Congress Poised to Take Final Vote on Health Care Reform; NABTC Urges Action
March 16, 2010
Final House and Senate votes on the health care reform legislation are expected the week of March 15, although some reports have suggested a delay in the vote timing. The House will consider the Senate-passed bill, and then both Houses are scheduled to consider amendments to the underlying Senate bill. While Democratic leaders and President Obama are pressing for the “yes” votes necessary for passage, there is much press coverage of the procedures that may be used to secure passage of the reform bill.
The North American Brain Tumor Coalition has not commented on those procedural matters, but it has once again joined with colleagues in the patient advocacy community to articulate the elements of health reform that are (more...)
Posted in General News, Health Care Reform
Register Now! Brain Tumor Action Week in DC on May 3 and 4
March 16, 2010
Please join the North American Brain Tumor Coalition and its friends for Brain Tumor Action Week in Washington, D.C. On Monday, May 3, the Coalition invites you to an education day, featuring a program focusing on brain tumor research and care and including training for advocacy visits to Congress. On Tuesday, May 4, advocates will meet with their Representatives and Senators to discuss policy issues of importance to the brain tumor community.
We’ll be pressing Congress to fund the National Institutes of Health generously, continue a Peer-Reviewed Cancer Research Program at the Department of Defense that supports pediatric brain tumor research, and ensure a strong and coordinated brain tumor research program at the National Cancer Institute and National Institute (more...)
Posted in Brain Tumor Action Week, Headlines
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