What Members Do For the Brain Tumor Community
NABTC member organizations are involved in many different activities in addition to advocacy, and you are invited to contact the individual organizations for their specifics (listed below on this page). Member organizations are active in the following areas:
Research
Member organizations fund millions of dollars yearly in brain tumor research, and many of them are involved in The Brain Tumor Funders’ Collaborative. While the primary source of brain tumor research funding is the National Institutes of Health and the pharmaceutical industry, private not-for-profit funders also contribute substantial amounts of money. NABTC members contribute approximately 17% of all such private funding.
Support
Member organizations provide countless support services to patients and families, support groups for survivorship and bereavement, individualized telephone and direct patient support, and financial help.
Events
Member organizations sponsor brain tumor events, forums, teleconferences, webcasts, information hotlines, caregiver trainings, and camp experiences.
Education and Publishing
Member organizations disseminate educational materials about brain tumors and treatment, brain tumor centers, care giving, survivor stories, and the latest brain tumor clinical trials. They publish on-line and printed newsletters.
Forums
Member organizations convene forums for basic brain tumor researchers to facilitate communication and collaboration among the researchers.
Mentorship
Member organizations provide advice to new support group leaders and new not-for-profit organizations.
Contact Member Organizations
The following organizations are members of NABTC. Contact the individual organizations to find out more about their contributions to the brain tumor community, and events happening in your area.
California
National Brain Tumor Foundation
22 Battery Street, Suite 612
San Francisco, CA 94111-5520
Telephone: 800-934-2873
FAX: 415-834-9980
E-mail: nbtf@braintumor.org
Website: www.braintumor.org
The Preuss Foundation
2223 Avenida de la Playa, Suite 220
La Jolla, CA 92037
Telephone: 858-454-0200
FAX: 858-454-4449
E-mail: fari@preuss.org
Florida
Brain Tumor Action Network
5749 Gall Boulevard
Zephyrhills, FL 33542
E-mail: info@btan.org
Website: www.btan.org
Georgia
Southeastern Brain Tumor Foundation
P.O. Box 422471
Atlanta, GA 30342
Telephone: 404-843-3700
FAX: 770-218-9620
E-mail: sbtfatlanta@aol.com
Website: www.sbtf.org
Illinois
American Brain Tumor Association
2720 River Road
Des Plaines, IL 60018
Telephone: 847-827-9910
Patient Line: 800-886-2282
FAX: 847-827-9918
E-Mail: info@abta.org
Website: www.abta.org
Kentucky
The Michael Quinlan Brain Tumor Foundation
4012 DuPont Circle
Suite 411
Louisville, KY 40207
Phone: 502-896-1701
FAX: 502-899-9828
E-mail: foundation@mqbtf.org
Website: www.mqbtf.org
Maryland
Childhood Brain Tumor Foundation
20312 Watkins Meadow Drive Germantown,
Maryland 20876
Telephone: 301-515-2900
Toll-free: 877-217-4166
FAX: 301-540-8367
E-mail: cbtf@childhoodbraintumor.org
Website: www.childhoodbraintumor.org
Massachusetts
Brain Tumor Society
124 Watertown Street, Suite 3H
Watertown, MA 02472
Telephone: 617-924-9997
Toll-Free: (US only) 800-770-8287
FAX: 617-924-9998
E-mail: info@tbts.org
Website: www.tbts.org
New York
Children’s Brain Tumor Foundation
274 Madison Avenue, Suite 1004
New York, NY 10016
Telephone: 212-448-9494
Toll-free: 866-228-4673
E-mail: info@cbtf.org
Website: www.cbtf.org
Oklahoma
Oklahoma Brain Tumor Foundation
820 N.E. 63rd Street
Oklahoma City, OK 73107
Telephone: 405-843-4673
FAX: 405-843-5392
E-mail: okbtf@okbtf.org
Website: www.okbtf.org
Canada
Ontario
Brain Tumour Foundation of Canada
620 Colborne Street, Suite 301
London, Ontario,
Canada N6B 3R9
Telephone: 519-642-7755
Toll free-Canada: 1-800-265-5106
FAX: 519-642-7192
E-mail: braintumour@braintumour.ca
Website: www.braintumour.ca