NABTC ACCOMPLISHMENTS AND BRAIN TUMOR RELATED MILESTONES
(From 2007 back to our inception in 1993)
June 27, 2007 Senate Labor, HHS, and Education Appropriations Subcommittee publishes FY 2008 report, which encourages NCI to continue its support for brain tumor clinical research consortia and SPOREs.
April 29-May 1, 2007 Brain tumor advocates participate in Brain Tumor Action Week events in Washington, D.C. and around the country.
February 14, 2007 Bill M235 (similar to the Benign Brain Tumor Cancer Registries Amendment Act) is passed in the Canadian House of Commons. This Motion states that, "the Minister of Health should continue to work collaboratively with Statistics Canada, the provincial and territorial cancer registries, and key stakeholders towards the ultimate goal of creating uniform national standards and guidelines for the surveillance of all malignant and benign brain tumors, including data collection, analysis and reporting."
July 20, 2006 Senate Labor, HHS, and Education Appropriations Subcommittee urges NINDS and NCI to collaborate in carrying out recommendations from the Report of the Brain Tumor Progress Review Group.
May 1-7, 2006 Brain tumor advocates publicize the message about brain tumor research during Brain Tumor Action Week.
July 14, 2005 Senate Labor, HHS, and Education Appropriations Subcommittee encourages NCI and NINDS to increase their attention to brain tumor research and to fund at least five brain tumor SPOREs.
May 1-7, 2005 Brain tumor advocates observe Brain Tumor Action Week in Washington, D.C.
December 2004 Mayo Clinic Cancer Center receives SPORE grant.
September 15, 2004 Senate Labor, HHS, and Education Appropriations Subcommittee states that NCI and NINDS are giving brain tumor research inadequate attention and encourages the funding of at least five brain tumor SPOREs.
September 2004 Duke University’s Tisch Brain Tumor Center receives SPORE grant.
May 2-8, 2004 NABTC sponsors Brain Tumor Action Week.
April 24, 2004 Craig Lustig represents NABTC in delivering testimony on brain tumor research before the House Appropriations Subcommittee for Labor, Health and Human Services, and Education.
July 8, 2003 House Labor, HHS, and Education Appropriations Subcommittee encourages NCI and NINDS to fully support brain tumor research, including SPOREs, and urges collaboration on brain tumor tissue banking.
June 26, 2003 Senate Labor, HHS, and Education Appropriations Subcommittee urges funding of brain tumor SPOREs, continued collaboration between NCI and NINDS to implement the recommendations of the Brain Tumor Progress Review Group, and collaboration on brain tumor tissue banking.
May 7, 2003 Zelda Tetenbaum represents NABTC in delivering testimony on brain tumor research and quality care before the House Appropriations Subcommittee for Labor, Health and Human Services, and Education.
May 4-10, 2003 NABTC sponsors Brain Tumor Action Week. NABTC, friends, and supporters attend a special reception in the Canadian Embassy honoring Pam Del Maestro (NABTC Chair) and Dr. Rolando Del Maestro, of the Brain Tumour Research Centre at the Montreal Neurological Institute (McGill University).
October 29, 2002 Benign Brain Tumor Cancer Registries Amendment Act signed into law, Public Law 107-260
October 2002 NCI and NINDS publish the Strategic Plan for Addressing the Recommendations of the Brain Tumor Progress Review Group.
October 10, 2002 House passes Benign Brain Tumor Cancer Registries Amendment Act.
August 1, 2002 Senate passes Benign Brain Tumor Cancer Registries Amendment Act.
August 2002 University of California at San Francisco is awarded SPORE grant. University of Alabama Brain Tumor Program receives SPORE grant.
July 22, 2002 Senate Labor, HHS, and Education Appropriations Subcommittee urges continued collaboration between NCI and NINDS on brain tumor research.
May 5-11, 2002 NABTC sponsors Brain Tumor Action Week.
2002 Specialized Programs of Research Excellence (SPOREs) are expanded to include brain tumors.
October 11, 2001 Senate Labor, HHS, and Education Appropriations Subcommittee encourages the implementation of recommendations of the Brain Tumor Progress Review Group and the funding of three brain tumor SPOREs.
May 23, 2001 Senator Jack Reed, introduces Benign Brain Tumor Cancer Registries Amendment Act, S. 2558.
May 6-12, 2001 NABTC sponsors Brain Tumor Action Week.
March 7, 2001 Lawrence Z. Pizzi represents NABTC in delivering testimony on brain tumor research, care, and benign brain tumor data collection before the House Appropriations Subcommittee on Labor, Health and Human Services, and Education.
January 20, 2001 Representative Barbara Lee, introduces Benign Brain Tumor Cancer Registries Amendment Act, H.R. 239.
2001 NCI and NINDS establish the Neuro-Oncology Branch.
November 2000 NCI and NINDS publish the Brain Tumor Progress Review Group report.
July 2000 Members of NABTC participate in deliberations of the Brain Tumor Progress Review Group Roundtable.
May 2-8, 2000 NABTC sponsors Brain Tumor Action Week.
Spring 1999 NABTC meets with leaders of NCI and NINDS, to initiate a brain tumor research forum, centered on the development of a long-term public-private brain tumor research agenda.
May 2-9,1999 NABTC sponsors BTAW, re-named Brain Tumor Action Week to more accurately capture the purpose of the event.
October 19-25,1997 NABTC sponsors the first Brain Tumor Awareness Week (BTAW), bringing brain tumor patients, families, friends and caregivers to Congress in order to advocate for enhanced brain tumor research and quality care.
September 1997 Dr. Susan Weiner represents NABTC before the President’s Cancer Panel on the topic of “Concerns of Special Populations in the National Cancer Program: The Real Impact of the Reduction in Cancer Mortality.”
July 24, 1997 Senate Labor, HHS, and Education Appropriations Subcommittee expresses their strong interest in brain tumor research and encourages the use of centers of excellence to conduct basic, translational, and clinical research on brain tumors.
1993 The NABTC is incorporated by several brain tumor organizations that share a vision to improve the outcomes for brain tumor patients and their families, through joint advocacy efforts.